Day 30 – Nearly but not quite.
Well here we are at day 30. My aim was to blog every day this month for Sjogrens awareness, and as today’s title suggests I didn’t quite make it.
I managed more days than not, but couldn’t find the energy to do it every day. But that’s ok by me, because six years in I am used to the nearly but not quite life style that is now mine.
You see, with Sjogrens, Plans often have to change. Sometimes I have to cancel at the last minute, sometimes I have to leave early, or can’t get there on time. Sometimes the things I want to happen have to give way to other things.
In a couple of weeks we are going on holiday. I know, as I have shared with you during this month, that good things come with a price. Lately I have been doing a little bit too much. Now were I to list what I have been doing, it probably wouldn’t sound much, but it is too much for me. Eighteen months ago I was still hoding down a job, now even doing a little something every day leads to me saying I’ve done too much. It’s sad, but it’s true.
So, with the holiday in mind, I have tried to cut back this week. I will be doing the same next week and the week after. This is preparation, in the hope that, with a rest period in every day, I will be able to enjoy the holiday. When we come home I will again take time to rest and recover.
I hope during this month I have helped people to have some understanding of what it’s like to live with sjogrens. It’s not pleasant, but it’s doable. It’s not a bundle of laughs, but you can still enjoy life. It’s not part time, but it’s not a death sentence.
Can I say I am on top of it everyday? No! Nearly but not quite.
Can I say I never have down days? NO! Nearly but not quite.
Can I say I manage to do everything I want? No! I want to put nearly but that would be exaggerating a little. 😉
Can I say I fully understand it? No! Nearly but not quite. There always seems to be something new!
I will continue to blog, but it won’t be everyday. Thanks for sharing this month long walk with me.
Until next time x